Friday, 11 March 2011

And the diagnosis is...

I do have Asperger's syndrome. I had the assessment on Wednesday, which with a break for lunch, took 2 and a half hours. First I was interviewed by the dr about why I wanted the assessment, then about my family background. Then my mum was taken to another room by the researcher to be asked about my childhood, whilst I was questioned by the dr about that too. I remembered a few things about my childhood, the main one being that as a child I couldn't make friends easily, I rather tagged along with others and went along with what they did. Also I invited other children to my house but never went to theirs. Then I was asked about employment and how I coped with that, so told them about that. And that I was now much calmer and less stressed being at home than at work. They said that I'd get the diagnosis if what my mum said matched what I said, and thankfully most of it did. So they said yes, I do have Asperger's. They told me that they'd be writing to my GP with lots of recommendations for me to see various specialists and teams to have assessments locally to find out what can be done for me locally. The recommendations are for me to see the local mental health team, possibly a cognitive behavourial therapist, an occupational therapist, a clinical geneticist (it's possible that it's genetic and comes from my dad), and contact the National Autistic Society. Also to see a social worker to find out what sort of benefits I can get now I've been diagnosed. At the moment I don't get any money coming in as my job seeker's allowance has stopped and I am not entitled to anything due to having enough savings. So I wait to hear from the GP, and once I do I will make an appointment. A couple of other things cropped up that I may have. I could have Generalised Anxiety Disorder as I do worry and get anxious a lot. Also, my hole-in-the-heart and my female organ problems can be related as I could have a missing chromosome, maybe again due to my dad, I don't know. I think that's why I had a blood test after it all. It wasn't too bad, and the man must've done a very good job as I don't have a bruise just a small red dot where it happened.

So now to wait to see what happens next. Watch this space...

2 comments:

Nell Dixon said...

Oh Julie, sending you a huge big hug. My middle dd has a disorder linked her being a prem which gives her some of the similar issues that you have. I know how hard it is for her so I can understand some of the difficulties you face and have faced, So glad though that perhaps now you can have support and help.

Julie Day said...

So am I Nell, esp for my mum who I know has been wondering about me ever since I was a child. Now I know too and it helps to know there is support out there.