Showing posts with label Susie and the Jiggling Jumper. Show all posts
Showing posts with label Susie and the Jiggling Jumper. Show all posts

Monday, 18 June 2018

Support your local library

I had a book launch at my local community library on Saturday, and it was brilliant. The librarians are very friendly and helpful, esp the main librarian called Sue. This is why I want authors and readers to support their own local libraries, esp community ones. I have been doing events and taking part in the library's own events such as fayres over the last 5 years. They have been understanding and supportive of me and my Asperger's, and are always helping me and praising me to their customers. So, if you are an author, please think about doing events at your local library, even more if it is a community led one like mine. There are a few others libraries in my borough, but none of them have been interested in me having events there. It has just been the community led one, who support me as an indie author. I thank them each time for having me. But I made a bigger thank you to them, esp Sue, by mentioning them in the acknowledgement pages in the back of Susie and the Jiggling Jumper (available on Amazon).

So, go and find your local library and ask if you can do events there from time to time. You will be bringing in more readers to them as well as yourself. A win-win, I believe.

Friday, 8 June 2018

Patience is a virtue...

It certainly was for me the last week when I had been trying to publish my latest children's book on Createspace. I didn't complete the first setup to start with, then there was a problem with the cover, then the interior file, then the cover, then inside again. The cover was sorted out by my illustrator. It was accepted. The interior file (contents) aren't perfect as there are no page numbers and the text isn't the same length on each page (like the others) but I am going to get it sorted out very soon as my illustrator has said she does interior formatting, and I will ask her to help me out to reformat it. Anyway, Tuesday just gone I finally got Susie out the in world. Her story is now on Amazon, available at https://www.amazon.co.uk/Susie-Jiggling-Jumper-Rainbow-School/dp/1720452539/ref=sr_1_1?s=books&ie=UTF8&qid=1528460311&sr=1-1&keywords=susie+and+the+jiggling+jumper.

This story is close to my heart because Susie is based on me when I was at primary school, with Asperger's and heart problems (I still have both).

I hope you will buy it and spread the word about Asperger's and heart problems that go with it.


Friday, 30 March 2018

ASD and common co-morbidity

I was born with a ventricular septal defect (hole in the heart or congenital heart disease). It wasn't until I was diagnosed with Asperger's in 2011 and read the report that I discovered that this is a common co-morbidity with ASD. Who knew?

So how does it affect me? I am slow, physically, than others. I get a stitch in my side and breathless when I either walk fast, go up a hill or run.

At school I hated PE because I'd be one of the last people to be chosen for teams; probably because I was slower. I hated the gym sessions in primary school. I couldn't do handstands because the blood would rush to my head and I'd go dizzy. In secondary school I remember when we had a sports day at a nearby stadium. Most of the school walked there but I had to get the bus with a few others in my class. We got off at the wrong stop and were late for the start.

When I was little I was told that the hole would decrease in size when I got older but over the last couple of years, I've been told that it has done the opposite and stretched. I still get breathless going too fast or up hill. Sometimes when I walk fast I can hear my heart beat louder, as it's worked hard.

So, that is my common co-morbidity with ASD. Do you have one, too? How does it affect you?

I have loosely based Book 3 of my Rainbow School series ' Susie and the Jiggling Jumper' on me. Susie has a heart condition which makes her slower than her classmates and her little sister, so she has to overcome this with her ASD.

Susie's advice with coping with the anxiety of a heart condition is: 'Don't worry about this. Do things at your own pace and don't feel pressured into doing something that you know you can't do.'